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Recommended Books and Magazines
After Breast Cancer:A Common Sense Guide to Life After Treatment by Hester Hill Schnipper, Bantom Books,2003
Be a Survivor:Your Guide to Breast Cancer Treatment by Vladamir Lange,MD.Lange Productions, 1999.
Consumer Magazine for women with cancer focusing on wellness.
Coping with Cancer Magazine
Consumer magazine for people coping with cancer.
615.791.3859
http://www.copingmag.com/
CURE Magazine
This magazine provides medical information about recent advances in diagnosis, treatment and prevention of cancer.The goal of cure is to provide up to date information, allowing consumers to become active, knowledgeable partners in their care.Free subscriptions are available for patients, survivors and caregivers.
1.800.210.CURE (2873)
http://www.curetoday.com/.
Dr. Susan Love's Breast Book by Susan Love, MD with Karen Lindsay. Perseus Books Group, 3rd edition, 2000.
Eating Well Through Cancer by Holly Clegg and Gerald Mitello.Wimmer Book Distribution, 2001.
From Victim to Victor for Cancer Patients and Their Families by Harold Benjamin.Dell Publishing Group, 1987.
I Flunked My Mammogram!: What Every Woman Needs to Know about Breast Cancer by Dr. Ernie Bodai and Richard Zmudam, Severna Park, MD: B2Z Publishing, 2005.
Kitchen Table Wisdom: Stories That Heal by Rachel Naomi Reme, MD, New York: Riverhead Books,1996
Living Beyond Breast Cancer by Marisa Weiss, MD.Times Books, 1998.
Lymphedema: Understanding and Managing Lymphedema After Cancer Treatment ACS: American Cancer Society, 2006.
MAMM Magazine
For women living with breast and reproductive cancers.
888.901.6266
http://www.mamm.com/
Navigating Breast Cancer: A Guide FOr The Newly Diagnosed by Lillie Shockney, RN, BS, MAS, Boston: Jones and Bartlett Publishers, 2007.
The Breast Cancer Husband by Marc Silver.Penguin Press, 2004.
When a Parent Has Cancer:A Guide to Caring for Your Children by Wendy Schlessel Harpman, MD.Harper Collins, 1997.
Winning the Race; Taking Charge of Breast Cancer by Nancy G. Brinker.Tapestry Press, 2001.
Women & Cancer
Woman to Woman:A Handbook for Women Newly Diagnosed with Breast Cancer11:28 AM 10/19/2009 by Hester Hill Schnipper, LCSW, and Joan Bern, PhD.Avon Books, Inc, 1999.
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Advocacy Groups
African American Breast Cancer Alliance, Inc.
Advocates for screening, early detection, and aggressive treatment for populations at risk. Established a being There! Advocacy campaign and informational brochure.
1.612.825.3675
http://www.aabcainc.org/
Americans with Disabilities Act Document Center
This site provides regulations and documents as well as links to information about the rights of people disabled by cancer or other disease.
http://www.usdoj.gov/crt/ada/adahom1.htm
CureBreastCancer, Inc.
Advocates for breast cancer awareness and research, with primary development and support for the breast cancer research stamp.
www.curebreastcancer.org/
The Feminist Majority Foundation's Breast Cancer Site
Includes news, information, research updates, and advocacy.
http://feminist.org/other/bc/index.asp.
National Breast Cancer Coalition
Grassroots advocacy movement of more than 300 member organizations and individuals working through a National Action Network dedication to eradicating breast cancer through action, policy and advocacy.
1.202.296.7477
www.natlbcc.org
National Coalition for Cancer Survivorship
This organization, founded by cancer survivors, advocates for research and public policies. Visit the web site to learn about programs, conferences, and events that NCCS sponsors.
www.cansearch.org/
Patient Advocate Foundation
The Web site provides insurance and financial information, legislative updates and legal guidance to patients and their families.
www.patientadvocate.org/
Sisters Network, Inc.
Promotes advocacy through information.
1.713.781.0255
http://www.sistersnetworkinc.org/
Susan G. Komen Breast Cancer Foundation
This organization’s mission is to conquer breast cancer through research, education, screening and treatment.The Web site provides information on breast cancer, including risk factors, treatment, prevention as well as a listing of resources in local communities.
1.800.462.9273
www.komen.org/
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General Resources
African American Breast Cancer Alliance, Inc.
Provides hope, awareness, educational materials, and social support to African American breast cancer survivors, their family members, and the community.
1.612.825.3675
www.aabcainc.org/
American cancer Society
The American Cancer Society advocates for policies and laws and raises funds for cancer research. This organization offers programs such as Look Good…Feel Better, Cancer Survivors Network and I Can Cope. The Web site offer comprehensive cancer information.
1.800.ACS.2345
http://www.cancer.org/
AVON Foundation
Avon Breast Cancer Crusade raises awareness and funds for access to care and finding a cure for breast cancer.
http://www.avoncompany.com/women/avoncrusade/
Breast Cancer Care
United Kingdom's leading provider of breast cancer information and support. Shares headline news and research updates on breast cancer, as well as breast cancer facts.
1.0808.800.6000
http://www.breastcancercare.org.uk/
Breast Cancer.org
Provides research updates and information frombreast cancer experts on a broad range of breast cancer topics.Holds regular chats with oncologists on different topics.
http://www.breastcancer.org/
CancerCare, Inc.
Cancer Care services include counseling, education, referral, financial assistance and other support services.The website offers specific information about breast cancer.
1.800.813.4673
http://www.cancercare.org/
CureBreastCancer, Inc.
CureBreastCancer, Inc. is a non-profit organization dedicated to bringing breast health education to all women and their families. Provides educational information and resources, advocacy initiatives, and raises funds for breast cancer research through breast cancer merchandise.
www.curebreastcancer.org/
Encore Plus of the YWCA of the USA
The YWCA offers ENCORE, a discussion and exercise program for women who have had breast cancer surgery, at local branches.
1.800.953.7587
www.ywca.org/
Fertile Hope
Non-profit organization dedicated to providing reproductive information, support and hope to cancer patients whose medical treatments present the risk of infertility.
1-888-994-HOPE
www.fertilehope.org
Living Beyond Breast Cancer
This organization offers support and information to women who have been diagnosed with breast cancer.They offer educational programs and online access to interactive message boards, educational audiotapes and videotapes.Call the Survivor helpline and talk to someone who is a trained volunteer affected by breast cancer
888.753.LBBC (5222)
www.lbbc.org/
Mautner Project
This national organization is dedicated to lesbian health.The organization provides referrals, education, and support groups for lesbians with cancer and advocate for health issues affecting lesbians locally and nationally.
1.202.332.5536
www.mautnerproject.org/
National Breast Cancer Coalition
This coalition includes 500 organizations dedicated to fighting breast cancer through advocacy, actions and education. The Web site provides fact sheets and a comprehensive guide to receiving quality care.
1.800.622.2838
www.natlbcc.org/
National Cancer Institute
This government organization provides information about breast cancer early detections and treatment.The web site provides access to information about cancer, clinical trials and health services. NCI offers booklets on a variety of cancer-related topics.
1.800.422.6237
http://www.cancer.gov/
www.cancernet.nci.nih.gov
National Lymphedema Network
This organization promotes prevention and management of lymphedema, which may occur after breast cancer treatment.The organization provides referrals to treatment centers, health care professionals, support groups and produces a newsletter and resource guide.
1.800.541.3259
http://www.lymphnet.org/
Reach to Recovery
This program is a peer support program of the American Cancer Society for people with a personal concern about breast cancer.A trained volunteer who is herself a breast cancer survivor will provide support and up to date information. To request services of a Reach to Recovery volunteer call the American Cancer Society at 1.800.227.2345
Sisters Network, Inc.
The Sisters Network is a national African American breast cancer survivorship organization providing information and advocacy and support 866-781-1808 or 713.781.0255
http://www.sistersnetworkinc.org/
Susan G. Komen Breast Cancer Foundation
This organization’s mission is to conquer breast cancer through research, education, screening and treatment.The Web site provides information on breast cancer, including risk factors, treatment, prevention as well as a listing of resources in local communities.
1.800.462.9273
http://www.komen.org/
Women's Information Network Against Breast Cancer
The mission of the Women’s Information Network is to increase public awareness of breast cancer and the resources available to women with breast cancer. The Web site includes information on breast health, breast cancer and healthcare options.
1.626.332.2255
www.winabc.org/
Network of Strength
This organization provides breast cancer information and support to women with breast cancer and their loved ones and caregivers.It provides information and education to the public and advocates for scientific research and legal rights.
312-986-8338
http://www.networkofstrength.org/
Your Shoes 24/7 Breast Cancer Support Center 1-800-221-2141 (English)*
Young Survival Coalition
A volunteer network of survivors dedicated to bringing attention to issues surrounding breast cancer in young women.Web site has information about breast cancer in young women, survivor stories, newsletter, email list, information on how to becomea member and other resources.
212.577.6259
www.youngsurvival.org/
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Genetics
FORCE (Facing Our Risk of Cancer Empowered)
FORCE is a non-profit organization for women with high risk for developing breast or ovarian cancer, due to family history and genetic predisposition. The website addresses issues and concerns women at risk may face.
http://www.facingourrisk.com/
Genetics Home Reference (National Library of Medicine)
The National Library of Medicine is the world's largest medical library. The NLM collects materials and provides information and research services in all areas of medicine and health care. The Genetics Home Reference is a source of information about genetic conditions and the genes or chromosomes responsible for those conditions.Has an excellent website for information about hereditary breast cancer.Information is presented in a FAQ format with questions such as “what genes are related to breast cancer,” “how do people inherit breast cancer,” and “where can I find more information about breast cancer.
http://www.ghr.nlm.nih.gov/condition=breastcancer
Myriad Genetic Laboratories, Inc
Salt Lake City, Utah based genetic testing laboratory that offers genetic testing for inherited breast and ovarian cancer.Has a “hereditary cancer quiz,” information on genetic counseling for hereditary cancer risk including the counseling and testing process, benefits, possible test results, and how to find a doctor/ genetic counselor, information on insurance reimbursement for testing, and useful FAQs.
www.myriadtests.com/home.htm
National Cancer Institute- Genetic Testing for Breast and Ovarian Cancer Risk: It's Your Choice
The NCI has a comprehensive brochure on genetic testing for breast and ovarian cancer.Includes a background on breast cancer, who is at increased risk for breast cancer, how genes affect breast and ovarian cancer risk, genetic testing advantages and disadvantages, and questions to ask a healthcare provider about genetic testing.
http://www.cancer.gov/cancerinfo/genetic-testing-breast
National Society of Genetic Counselors (NSGC)
Professional organization of Genetic Counselors.Genetic counselors assist people who have a personal and/ or family history of cancer clarify their cancer risk and may include a discussion of genetic testing.ResourceLink is a database of genetic counselors and can be searched by zip code, city, or state.
http://www.nsgc.org/
People Living with Cancer- Cancer Genetics
Outstanding patient site.Many individual sections related to cancer genetics including The Genetics of Cancer, The Genetics of Breast Cancer, Deciding on Testing, Pros and Cons of Testing, Ethical, Social, and Legal Implications, and more.
http://www.asco.org/plwc/MainConstructor/1,1744,_12-001010-00_14-00Cancer+Genetics-00_21-008,00.asp
Susan G. Komen Breast Cancer Foundation- Genetics of breast cancer
Printable information sheet that is part of the “Facts for Life” series.Answers questions such as “what are genes,”“genes and breast cancer,” and “can I find out if I have an inherited gene mutation.
http://www.komen.org/stellent/groups/harvard_group/@dallas/documents/-komen_site_documents/rfapgenetics.pdf
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Survivorship
African American Breast Cancer Alliance, Inc.
Sponsors local support groups for breast cancer survivors at different stages of their experience, as well as celebrations and health events.
1.612.825.3675
http://www.aabcainc.org/
Breast Friends Inc.
Offers 24 hour, toll free, national hotline for one to one support, comfort and information for breast cancer patients.
888.718.3523
http://www.breastfriends.org/
livingwithit.org
In addition to basic cancer information, LivingWithIt provides tips on diet and exercise, lifestyle and money matters.This site offers an interactive treatment diary and other resources for patients and caregivers.
http://www.livingwithit.org/
LiveStrong
Educational resource of the Lance Armstrong Foundation.Website has information on topics related to physical, emotional and practical issues as well as survivor stories and tools for cancer survivors.
http://www.livestrong.org/
National Coalition for Cancer Survivorship
Provides public forums and survivor networking opportunities.
http://www.canceradvocacy.org/
SHARE (Self Help for Women with Breast or Ovarian Cancer)
Provides information hotlines in English and Spanish, peer-led support groups, public education, advocacy, and wellness programs.
1.212.719.0364
http://www.sharecancersupport.org/
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